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Educating the severely disabled medically complex child
Title
Educating the severely disabled medically complex child
Abstract
This study examines the perspectives of parents who have children with severe and profound disabilities and medically complex conditions. Children have the right to a free and appropriate public education. However, when faced with extremely significant physical, cogn...
Show moreThis study examines the perspectives of parents who have children with severe and profound disabilities and medically complex conditions. Children have the right to a free and appropriate public education. However, when faced with extremely significant physical, cognitive, and medical deficits, quality of life plays a central role in determining the least restrictive environment for their education to take place. In this qualitative single case study research design, parent participants were interviewed to gain their perspective based on the conceptual framework that incorporates school options, barriers and resources, parent support, and quality of life. Data from interview transcripts were coded leveraging thematic analysis. Four major themes were found, and conclusions were developed by weaving evidence from the interviews and literature. Results revealed the importance of education, the importance of quality of life, giving the child what he or she needs, and finding the support needed to raise a child with severe and profound disabilities and medically complex conditions. These findings indicate that all stakeholders play a positive role in fostering more inclusive and equitable educational practices. This includes supporting educational programs, ensuring access to specialized schools or medical care, promoting social opportunities, advocating for vulnerable students, and acting with empathy, thereby shaping the policies and frameworks that guide special education.
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Year Issued
2024
Author
Grassmyer, Cassie
Sub-title
A case study on parent perspectives
Improving parent collaboration at IEP meetings
Title
Improving parent collaboration at IEP meetings
Abstract
An Individual Education Program (IEP) is a critical document that drives decisions about educational support and services for students with a disability. It is imperative that parents have a role in the development of their child’s IEP through a collaborative process...
Show moreAn Individual Education Program (IEP) is a critical document that drives decisions about educational support and services for students with a disability. It is imperative that parents have a role in the development of their child’s IEP through a collaborative process. This study examines the correlations between various subgroups and the level of satisfaction of a collaborative IEP meeting. In this qualitative study, a digital survey is used to gain feedback from 29 parents of students from preschool through twelfth grade receiving special education services. Findings reveal that parents expressed overall satisfaction with the level of collaboration at IEP meetings with relatively positive satisfactory ratings consistent through each survey question. Survey data was then correlated with four subgroups; grade level, disability category, number of IEP meetings attended, and race/ethnicity. Themes emerged from synthesizing the data specific to four subgroups that included variations in the data. As part of the study, participants provided suggestions for improving collaboration at IEP meetings. Parents expressed a desire for improved communication, opportunity to provide feedback, and improved agenda for IEP meetings. In contrast, some challenges were noted by some parents that limit parental engagement. The importance of this data can potentially impact the effectiveness of IEP meetings and improve student outcomes. A consideration for future research could explore the impact of the recommended interventions, change of district policies, and generalization across other school districts.
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Year Issued
2024
Author
Michaelson, Jill
Sub-title
The correlation to various subgroups